Anxious Lives: Exploring Lived Experience of Nigerian Sickle Cell Patients
Alex E. Asakitikpi *
Department of Sociology, Monash University, South Africa.
*Author to whom correspondence should be addressed.
Abstract
This paper discusses the illness narratives of undergraduate students suffering from sickle cell anaemia. The study explores participants’ concept of the self in relation to the disease on the one hand, and on the other, the construction of their identity in relation to significant others, friends and the wider community in order to gain a deeper understanding of their symbolic and interactional meanings. Data was generated from six undergraduate students in a private university in south western Nigeria. The qualitative data collection techniques used included in-depth interviews, unobtrusive observation and informal group discussion. The study was conducted over a period of two years and the data were content analysed. The study found that sickle cell patients defined the disease as “natural” due to its hereditary nature. Participants’ experiences with the disease in relation to others were described as “frightening”, “stressful” and “delimiting” within a broad socio-cultural framework that is characterized by empathy and endurance. The findings suggest a more focused awareness campaign that stresses cooperation and understanding of the disease and interactions with sickle cell patients.
Keywords: Sickle cell disease, sickle cell patients, lived experience, social stigma, chronic illness, self, pain, Nigeria